Cara Anthony, Author at 吃瓜不打烊 吃瓜不打烊 produces in-depth journalism on health issues and is a core operating program of KFF. Tue, 20 Oct 2026 13:17:31 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.11 /wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=32 Cara Anthony, Author at 吃瓜不打烊 32 32 257378068 More Medications, More Risks. If You鈥檙e Worried, Start a Deprescribing Discussion. /aging/healthq-deprescribing-medication-mix-drug-risks-polypharmacy-talk-to-doctor/ Tue, 20 Oct 2026 09:00:00 +0000 /?p=2295885&preview=true&preview_id=2295885
(Maria Fabrizio for WPLN and 吃瓜不打烊)

For nearly three years, Jonathan Bledsoe of Reading, Pennsylvania, took one prescription to stabilize his mood and one to keep his cholesterol in check, among a handful of other medications.

“You wouldn’t think you would have to be your own advocate and look out for yourself as far as managing your medications,” the Marine veteran said. “But when you wake up one morning and what you pee comes out the color of fresh brewed coffee, there’s an issue.”

He took his concerning symptoms back to his multiple doctors and learned the interaction between his medications was starting to damage his liver. After he changed medications, his liver and kidney function returned to normal.

Adverse drug interactions are becoming a bigger health concern as more people take multiple medications, said Amanda Mixon, a hospitalist and associate professor of bioinformatics at Vanderbilt University.

The percentage of Americans over 65 taking five or more medications, known as polypharmacy, nearly doubled from 2000 to 2020, according to a study published in . Now, more than a third of older adults are taking five or more medications a day.

Mixon said she sees older patients with an average of 16 medications, often from multiple prescribers and pharmacies.

“As you accumulate more and more medications, the chance of them interacting with each other and having bad interactions increases,” Mixon said. “As these medications get added sort of progressively, that can accumulate over time, and then people are having more side effects.”

The QTip:

If you’re taking medications and supplements, keep your own up-to-date list and have it with you.

If you’re concerned about your medications, here’s what to know:

There’s No 鈥楿nicorn Pharmacist’

Sometimes, a medication intended to treat one issue leads to many more, known as a “prescribing cascade”: A prescription for the initial symptom causes a side effect, then that side effect needs to be treated. Eventually, the combination of meds may cause other issues that require yet another medication.

For instance, Mixon said, heart failure patients take a water pill to reduce fluid retention. As a result, the constant need to urinate can lead to incontinence, which is treated by another medication.

“We do an amazing job of treating. We are great at diagnosing, and medicines have an amazing role in increasing our longevity as humans,” said pharmacist . He’s the CEO of the North Carolina-based consulting company GeriatRx, which focuses on helping patients get off unnecessary medications. “It’s not the intent of our providers to overtreat. It’s just what we’ve been trained to do.”

When multiple prescribers are involved, they may not be aware of the patient’s other medications, he said, especially if the health providers are affiliated with different health systems that have separate patient records.

“Do not assume that someone is checking all of these things in the background. There isn’t this magical unicorn pharmacist just making sure everything is safe. Yes, even at the local pharmacy,” Canterbury said. “So make sure, if you notice something is off, that you advocate for yourself.”

A Shift Toward 鈥楧eprescribing’

“Deprescribing,” the process of intentionally tapering off medications, in the past decade, alongside the corresponding rise of polypharmacy and the associated health risks.

The science on how to taper patients safely is newer and still not widely taught in medical schools, Canterbury said.

He said patients who are worried about taking multiple medications 鈥� especially people experiencing a new symptom or an unexpected side effect 鈥� should start a conversation about deprescribing with their specialists or primary care providers.

“I promise you, they don’t bite,” he said. “Because you’ll be surprised that the more you bring up stopping a medication, the more willing they are to actually have that dialogue and help you get off of it if you don’t need it.”

The goal isn’t kicking as many meds as possible, Canterbury said 鈥� it’s patient safety. With age, bodies metabolize medications differently, he said, increasing the likelihood of harmful side effects like constipation, diarrhea, falls, and memory loss.

Keep a Medication List

Many pharmacists and doctors agree on the value of keeping an updated medication list, including the vitamins and supplements you’re taking. While there are QR code bracelets and medication tracking apps, sometimes the easiest strategy is an old-fashioned piece of paper.

“Everyone needs a medication list in their pocket,” said pharmacist Jen Hammons, director of rural health advancement at the Appalachian College of Pharmacy in Virginia. “If you can’t commit it to memory, you need to have a list.”

People and Policy

Health and Human Services Secretary Robert F. Kennedy Jr. has championed weaning Americans off psychiatric medications that he says are overused, a stance that has polarized the medical community. This year, the Centers for Medicare & Medicaid Services that clarifies how physicians and pharmacists can be paid for their work reviewing medications and helping patients taper off when appropriate. Previously, physicians reported uncertainty over whether they could get paid for deprescribing, which can be a time-intensive process.


Katherine Ruppelt and Emily Siner at Nashville Public Radio contributed to this report.


HealthQ is a health series from reporters Cara Anthony and Blake Farmer, approachable guides to an unapproachable healthcare system. It’s a collaboration between Nashville Public Radio and 吃瓜不打烊.

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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The Sometimes-Awkward Art of Asking for a Second Opinion /health-industry/healthq-second-opinions-doctors-how-to-ask-for/ Tue, 13 Oct 2026 09:00:00 +0000 /?p=2293337&preview=true&preview_id=2293337 When Carol Daniel, a veteran broadcast journalist who lives near St. Louis, was diagnosed with thyroid cancer in 2022, her husband encouraged her to seek a second opinion. She was worried that consulting another doctor might seem like a betrayal.

Daniel said she wondered: “Am I cheating on him? Am I going behind his back? Am I acting like I don’t trust him by seeking a second opinion?”

Many patients find themselves in this position, but family medicine physician Jen Caudle said patients shouldn’t feel awkward about asking for a second opinion. In fact, in her practice in New Jersey, she encourages people to have open conversations with their care team.

“We shouldn’t be offended,” Caudle said. “We should support you.”

Patients can also think of their primary care provider as the quarterback of their care team, Caudle said, and ask that doctor for help navigating opinions or diagnoses from specialists.

Cara Anthony and Blake Farmer, hosts of the HealthQ series, spoke with Caudle about the sometimes-awkward art of asking for a second opinion.

The QTip:

Your primary care provider can help you navigate first and second opinions from specialists.


Katherine Ruppelt and Emily Siner at Nashville Public Radio contributed to this report.


HealthQ is a health series from reporters Cara Anthony and Blake Farmer, approachable guides to an unapproachable healthcare system. It’s a collaboration between Nashville Public Radio and 吃瓜不打烊.

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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Before Saying Yes to the Medical Test, Know the Risks and Benefits /health-industry/healthq-medical-tests-overtesting-risks-benefits-mri-full-body-scans/ Tue, 06 Oct 2026 09:00:00 +0000 /?p=2292777
(Maria Fabrizio for WPLN and 吃瓜不打烊)

When Lori Baute first learned about precautionary full-body MRI scans, she dismissed the idea.

“鈥奍 heard Kim Kardashian got one, and some other wealthy people,” Baute said. But at 59, she was worried about her long-term health. She has a family history of cancer, and she’s a critical caregiver for her aging mom and her adult brother with special needs.

After a close friend was diagnosed with bladder cancer, Baute decided to make an appointment with a clinic that offers full-body scans near where she lives in Ocala, Florida. Her results came back a week later. One major finding: She has lesions on her pancreas. “When I got that, I was really petrified,” she said.

Worried about pancreatic cancer, Baute shared the results with her gastroenterologist, who ordered a targeted MRI scan as a follow-up. That test showed the lesions were benign cysts.

Baute’s experience is becoming more common as companies pitch body scans directly to consumers as a way to detect cancer and other diseases early. But no major medical association 鈥� including the American Cancer Society and the American College of Radiology 鈥� recommends these scans for people without a very high risk of certain cancers.

And even medical screenings that doctors do recommend can carry some of the same reasons for caution.

The QTip:

Before saying yes to the test, ask about the risks and benefits 鈥� even if your doctor recommends it.

Here’s what to know:

Every Test Comes With Costs and Risks

At a minimum, a medical test will cost you time 鈥� and could mean a hefty medical bill. Many tests marketed directly to consumers, like full-body scans and at-home blood screening kits, are not covered by insurance, and some tests can cost several thousand dollars.

Some laboratory tests might involve only the discomfort of a blood draw or the awkwardness of collecting a urine or stool sample, but others carry the possibility of physical harm. For example, a small percentage of people who get CT scans each year will develop cancer because of the radiation exposure from the tests, . Relatively simple procedures like a biopsy or an endoscopy come with the risks of pain, infections, tearing, a reaction to anesthesia, or further serious complications.

Plus, testing can cause anxiety and stress 鈥� as patients and if the results are inconclusive. “I see patients every week in my office who are tortured by the results of tests that they really didn’t need to ever have,” said , a University of California-San Francisco professor and cardiologist and . For example, if you discover a cyst, then “you’re living for the next year, two years, three years getting repeated tests to figure out whether it’s benign or a cancer,” Redberg said. She cautions patients against testing unless they have specific symptoms.

Testing Often Leads to More Testing 鈥� And More Risk

A reality of getting a medical test is that the results often lead to additional, and potentially more invasive, testing. Doctors call this “diagnostic cascade.”

Baute, for example, plans to continue monitoring her pancreas with annual scans. To her, she said, the financial cost and anxiety are worth it if she can feel “like I’m in control of my health and I have knowledge.”

But Redberg points to a worst-case scenario, in 2011: After starting an exercise program, a 52-year-old woman experienced chest pain and went to see her doctor. Her exam suggested that her pain was muscular and she had a low risk for heart disease. Still, her doctor ordered a scan of her heart to reassure her. The results led her doctor to order another test, during which her artery was ripped. She had emergency bypass surgery, experienced complications, and ultimately, Redberg said, “she ended up with a heart transplant 鈥� all from this unnecessary scan just to reassure her.”

A Few Simple Questions Can Help You Decide

Before saying yes to the test, it’s important to know about the risks and benefits 鈥� even if your doctor recommends it, Redberg said. She suggests asking a medical provider and yourself questions like:

  • What am I going to learn from this test?
  • How is this test going to help in my care?
  • Could I improve my health without doing this test?

She said many test results, especially in her field of cardiology, end up pointing patients back to the basics of a healthy lifestyle, like eating well, exercising, and not smoking. And those, she said, could be advised without a test.

People and Policy

If your health insurance covers a medical test, that means the test has most likely met vetted, scientific standards that demonstrate benefits to patients. Insurers must cover evidence-based services that have from the U.S. Preventive Services Task Force. Private insurers, as well as Medicaid and Medicare plans, must cover the full cost of recommended preventive screenings. Many medical tests marketed directly to consumers are not covered by insurance.


Emily Siner at Nashville Public Radio contributed to this report.


HealthQ is a health series from reporters Cara Anthony and Blake Farmer, approachable guides to an unapproachable healthcare system. It’s a collaboration between Nashville Public Radio and 吃瓜不打烊.

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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A Death Revives Concerns About Police Brutality Six Years After National Reckoning /public-health/police-brutality-mental-health-crisis-national-reckoning-sikeston-missouri/ Thu, 23 Jul 2026 09:00:00 +0000 /?p=2263026 SIKESTON, Mo. 鈥� Not everyone at Lloyd Gilmore’s funeral knew him well. One woman, who had ironed her clothes two days in advance, said she just wanted to be there for his family. School-age children, guided by their parents, approached his open casket in the sanctuary of Cornerstone Baptist Church and peeked inside. Other people looked away.

On that rainy Friday afternoon, hundreds of such mourners gathered to honor the man who went to the police department for help and didn’t come back.

“Stay woke. Stay guarded,” his daughter Lania Gilmore told the church full of mourners in this city of fewer than 16,000 with a long, troubled history of racial violence. “Be there for your family and love on one another.”

Her father, a 44-year-old Sikeston resident, died in police custody on June 10. During a quick, physical altercation involving seven Sikeston police officers, he was shocked with a Taser and put into hobble restraints, which allow officers to hogtie a person’s feet and hands, according to a through a public records request. Two autopsies were performed, but they 鈥� and Gilmore’s cause of death 鈥� had not been released as of mid-July while the result of a toxicology report remained pending.

Gilmore had approached an officer in the parking lot of the police station, according to the report, speaking words the officer said he could not understand. Lania Gilmore said that her dad, who had mental health issues, had asked her to call the police department and that he ran there seeking help.

“I kind of trusted the fact that he was OK because he was at the police station,” she told 吃瓜不打烊.

A man sits on a folder chair with his chin resting on his hand while he smiles up towards the camera.
Lloyd Gilmore, a 44-year-old Sikeston resident, had been looking for a safe space on the day he died, said his daughter Lania Gilmore. He told her to call the police department for help. Before he died, the police shocked him with a Taser and put him into hobble restraints. (Lania Gilmore)
Three adults, all in black, formal funeral attire, embrace each other.
Some of Lloyd Gilmore’s children embrace during his funeral on June 26 at Cornerstone Baptist Church in Sikeston. “Stay woke. Stay guarded,” his daughter Lania Gilmore (left) told the church full of mourners. “Be there for your family and love on one another.” (Cara Anthony/吃瓜不打烊)
A memorial plaque of Lloyd Gilmore.
A plaque is displayed during Lloyd Gilmore’s funeral. Hundreds of mourners gathered in his honor. (Cara Anthony/吃瓜不打烊)

At his funeral, hardly anyone spoke of the police 鈥� and, at the family’s request, the funeral home declined to ask police to provide traffic assistance as they usually would. A preacher did his best to comfort Gilmore’s family. “Sometimes we need not talk,” the Rev. Tommy Robinson Jr. told the crowd. “We just need to listen.”

But after years of expressing concerns of racial bias within the city’s police department, some Black Sikeston residents wonder if anyone is listening at all anymore. They want justice even as the national reckoning over police brutality has faded from public view.

“We need the police. We just need them to do their jobs correctly and leave Black people alone,” said Mark Wiggins, president of Sikeston’s NAACP branch. “They know it. We know it. The truth of the matter is there’s a lot of unwarranted cop killings of Black men in America.”

A man sits comfortably on a chair in front of his house.
Mark Wiggins, president of the local NAACP branch, sits outside his Sikeston, Missouri, home. Wiggins grew up in the city, which has a history of racial violence. After Lloyd Gilmore died in police custody on June 10, Wiggins protested alongside other residents and civil rights activists. (Cara Anthony/吃瓜不打烊)

But despite worldwide protests in 2020 in the wake of high-profile police-involved killings of Black people, the public paid little attention when a prestigious group released a report last year about deaths in custody, said Roger Mitchell Jr., a forensic pathologist finishing his term as president of the , which represents African American physicians. The urged Congress to require states to collect and report data on all in-custody deaths, a problem that Mitchell said disproportionately affects Black men.

“We are in an anti-diversity environment,” Mitchell said. “We’re in a war.”

Upon returning to the White House last year, President Donald Trump that targeted diversity, equity, and inclusion programs. As a result of that and other measures, funding for racial equity has dwindled, researchers who once studied violence as a public health issue have redirected their work to less politically charged topics, and a growing fear of professional and political retaliation has made it increasingly difficult to sustain the momentum.

Kevin Myles, a civil rights leader based in Georgia who has trained tens of thousands of activists around the country, said he saw a shift in priorities around racial equity before Trump was reelected. Since then, it has escalated, he said, and he has lost at least half his funding for his work on equity, child welfare, and mass incarceration.

“I don’t think we really were prepared. It’s not that we didn’t take it seriously. I don’t think we were psychologically prepared for what this means,” Myles said. “Everything we have done before now was practice. The game has just started.”

Sikeston, located in the rural area of southeastern Missouri known as the Bootheel, has a history of racial violence, including the brutal lynching of a Black man named Cleo Wright in 1942. Another Black man, Undraus Nabors, was found dead in a grain silo months after heading out to pick up his white girlfriend in 1999. In April 2020, less than a month before George Floyd’s murder in Minneapolis, an unarmed Black man, Denzel Taylor, was shot at least 18 times by Sikeston police officers. The city was the subject of the 2024 “Silence in Sikeston” documentary film and podcast by 吃瓜不打烊, Retro Report, and WORLD.

Larry McClellon, a longtime Sikeston resident who founded a civil rights group called And Justice for All, has expressed concerns about the integrity of his city’s police department for decades. He’s also convinced that being vocal about racism in Sikeston comes with a price.

“It’s a dark side of Sikeston that a lot of people do not know and don’t prefer to know,” McClellon told 吃瓜不打烊 in 2021 after police fatally shot Denzel Taylor. “But I’ve walked the streets.”

He believes someone burned down the headquarters of And Justice for All in 2019. A said the fire was “suspicious in nature.” The electricity in his building wasn’t on when flames erupted, he said, so he wasn’t satisfied when an investigator called it an electrical fire. He asked the department to take another look. No one was charged.

A photo showing a room damaged by fire.
The headquarters of And Justice for All, a civil rights advocacy group in Sikeston, was destroyed in a 2019 fire. A report from the city’s public safety department says the 2019 fire was “suspicious in nature.” Larry McClellon, a longtime Sikeston resident who founded the group, has expressed concerns about racial violence in the community. (Cara Anthony/吃瓜不打烊)

James McMillen, the city’s police chief, told 吃瓜不打烊 in 2021 that he had plans to improve policing before Taylor died. At the time, McMillen, who is white, said he and his department had “a poor relationship” with Black residents in the city. He started some community meetings after Taylor’s death, but he said in 2024 that people had stopped showing up.

“We have tried,” the chief said during a this month. “But, as my daddy would say, a relationship is a two-way street. And so I don’t know what else I can do.”

During the meeting, Lania Gilmore pleaded with the city to release more information about her father’s case. Other residents wanted to know why the officers involved were not placed on administrative leave immediately after Gilmore died.

“It depends on the circumstances. It does,” McMillen told them. “You’re assuming a certain set of details that you don’t know.”

Another resident asked the city about training for officers. McMillen said his officers are trained. Nationwide, many communities have to assist people in crisis.

“Chief does not want anybody to be mistreated at all. Period,” Sikeston Mayor Greg Turnbow, who is white, said at the meeting. “And I guarantee you, I put my life in his hands. I’d do it today.”

McMillen declined to comment on 吃瓜不打烊’ questions about Gilmore’s case and the community’s concerns about the department. The Missouri State Highway Patrol investigated the death and planned to refer the results to the Cape Girardeau County prosecuting attorney, Sgt. Bradley Germann said.

A man and a woman stand side-by-side wearing matching custom T-shirts with a photo of Lloyd Gilmore.
Lloyd Gilmore’s friends Tawanna and Willie Wilson wore custom T-shirts to his funeral. (Cara Anthony/吃瓜不打烊)
A man with his child stand beside an open casket.
Andre Young and his 5-year-old son view Gilmore’s body during the funeral. (Cara Anthony/吃瓜不打烊)
A man leans over to hug a woman who is sitting in front of him. The woman gently touches a tissue to the man's face in an emotional moment.
Cynthia Gilmore sits in the front row of her son’s funeral at Cornerstone Baptist Church. (Cara Anthony/吃瓜不打烊)

The day Gilmore died, his daughter said, he had been anxious and was looking for a “safe space.” So, she said, he had spent much of the day watching her braid hair at the salon where she works, then he went with her to her eyelash extension appointment. Lania Gilmore said he was still feeling undone, but she needed some space, so he asked her to call the police instead. She said she did, then she watched him run toward the police station.

The rest unfolded within 30 minutes, according to the police report and . The police report said that, amid an ensuing scuffle, Gilmore bit one officer’s hand 鈥� “but did not break the skin.”

After the police stunned and restrained Gilmore, a paramedic gave him a sedative, and the emergency medical services took him to a hospital, according to the police report. The report listed five victims 鈥� all police 鈥� and accused Gilmore of third-degree assault and resisting arrest.

Lania Gilmore said police told her that her father overdosed. But she said she doesn’t understand how that would have been possible, given the short time between when he left her and an ambulance was called.

The city’s police force knew Gilmore had mental health issues, his daughter said. Police officers in a neighboring community “excessively tased” and beat him in 2020, . He received a $65,000 settlement five years later, and she said that experience left a mark.

After Gilmore died, Louis Houston, a longtime Sikeston resident, said he decided to move 30 minutes outside the city to a neighboring community, where he feels safer. He said hearing about other Black Sikeston residents being harassed by the police department had started to affect his mental health.

“I got on away from here,” said Houston, who returned to Sikeston for the funeral.

Louis Houston moved to Sikeston almost 20 years ago but recently decided to move away after Lloyd Gilmore died in police custody. He says the way the police department treats Black residents was affecting his mental health. (Cara Anthony/吃瓜不打烊)

Houston’s already thinking about the conversations he will have with his young children about how to respond if they ever interact with a police officer. He has a script in mind.

“Be careful,” Houston plans to tell them. “They can help you, but they also can kill you.”


Related Article

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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HealthQ Special: Caregiving in the Sandwich Generation /aging/healthq-special-sandwich-generation-caregiving-fmla-early-onset-cancer/ Thu, 02 Jul 2026 09:00:00 +0000 /?p=2249670&preview=true&preview_id=2249670

We’re expecting our first baby boy in end of August. And when I think about what it’s going to feel like to take care of my wife and my new son and my mom, it’s a bit overwhelming.

William Morrison, from Nashville, Tennessee

If you are taking care of a child and you have a parent over 65, you’re among millions across the U.S. in the same life stage.

Nearly a quarter of all American adults 鈥� and half of all adults in their 40s 鈥� fall into this “sandwich generation” category, . And being in the middle of that sandwich can feel … intense.

“I have kind of prided myself on being self-sufficient. And in this season of life, that’s almost been laughable,” said Jason McAnally, a Nashville father of two who helps care for his aging dad.

HealthQ hosts Cara Anthony of 吃瓜不打烊 and Blake Farmer of Nashville Public Radio, both in the sandwich generation themselves, are your approachable guides to an unapproachable healthcare system. In this one-hour special about navigating health and caregiving, they tap researchers, physicians, experts, and their own personal experience to explore:

  • Identity: When to start calling yourself a caregiver, and why it matters.
  • FMLA: How to start a conversation with your boss about taking federally protected leave from work.
  • Kids and mental health: How to know it’s time to take an anxious child to therapy.
  • Early-onset cancer: What you need to know about spotting diseases that are on the rise among people under 50.

The HealthQ team acknowledges the messiness, the humor, and the beauty of this season of life. Come on the journey with us.

Can’t see the audio player? Visit kffhealthnews.org to listen.

This installment is part of HealthQ’s reporting on caregiving among the sandwich generation. For more, check out the series archive.

HealthQ is a health series from reporters Cara Anthony and Blake Farmer, approachable guides to an unapproachable healthcare system. It’s a collaboration between Nashville Public Radio and 吃瓜不打烊.

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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Worried About Your Aging Parents? Welcome to the Caregiving Club /health-care-costs/healthq-sandwich-generation-caregiver-title-stages-expectant-aging-parents-tips/ Tue, 23 Jun 2026 09:00:00 +0000 /?p=2249666 Your browser does not support the audio element.

Can’t see the audio player? Visit kffhealthnews.org to listen.

Cara Anthony tries to convince her HealthQ co-host Blake Farmer that there are benefits to embracing the caregiver identity when helping an aging parent.

An illustration of a person pushing a senior man in a wheelchair, apparently running from a giant "hello my name is caregiver" name-tag.
(Candice Evers for WPLN and 吃瓜不打烊)

When his father was diagnosed with gallbladder cancer in 2025, William Morrison immediately went into caregiving mode.

“We were in the hospital every day,” he said. “I was really playing the intermediary between the medical staff and our family and kind of helping have those conversations and push for those answers.”

One in 10 Americans say they are a caregiver for a parent 65 or older, . And many people in the sandwich generation 鈥� those who have both children and aging parents 鈥� start their caregiving journeys like Morrison: stepping up during a medical crisis and becoming a family caregiver essentially overnight.

For other people, taking on the role and identity of a caregiver happens more slowly.

Researchers and experts say the spectrum of caregiving is broader than many people realize and that embracing the caregiver title before there’s a crisis can make a significant difference in this phase of life.

Worry Comes First

Being a caregiver can start long before you go to a doctor appointment with a loved one or move your parents into your house. “Oftentimes what we see out in the world is a very limited definition of who a family caregiver is,” said Denise Brown, a caregiving coach and the founder of Caregiving Years Training Academy in Illinois. Being a caregiver is “not necessarily around defining caregiving by tasks and chores, but about that emotional impact.”

Brown created a framework that defines caregiving as a . She said the first stage 鈥� the “expectant caregiver” 鈥� begins the moment you start to feel concerned about a loved one.

“鈥奩ou look into the future and you think, 鈥極h, I think someone’s going to need help in the family,’” Brown said.

When you start to get actively involved in a loved one’s care, that triggers the second stage, what Brown calls the “freshman caregiver”: “You’re learning the lay of the land. You’re learning the language of all the systems that you now manage. The best thing to do in this stage is to get comfortable experimenting.”

Caring for Parents Brings Different Stressors

The kind of care that Morrison provided 鈥� responding to an immediate medical crisis 鈥� catapulted him into the third stage of caregiving, the “entrenched caregiver.” By the time you hit this point, Brown said, “you can feel completely overwhelmed and swallowed up by the experience.”

that the stress is especially acute for people taking care of parents. The role reversal stresses the relationship: Caregivers who focus solely on children don’t deal with the tension linked to shifting power dynamics and other changes that happen when an adult child starts to care for a parent.

Burnout, defined by physical and psychological fatigue, was higher among caregivers of aging parents than among caregivers caring only for children. And for caregivers in the “sandwich generation,” who were taking care of both children and aging parents, personal burnout scores were even higher.

The Title Makes a Difference

Many people who perform care tasks don’t consider themselves caregivers, , but those who do are more likely to access support services and feel a sense of community with other caregivers.

“Anyone in a caregiving situation deserves support and help,” Brown said.

Embracing the role of caregiver early also allows you to have “really good conversations with people in your life” about their desires 鈥� and yours 鈥� as you enter this phase, Brown said.

Morrison, whose father died earlier this year, is about to enter his own sandwich generation era: He and his wife are expecting a baby boy in August, and he’s been stepping in to help his mom with housework and administrative tasks.

Morrison and his wife have already had conversations about making time for themselves and each other after their son is born. Morrison also wants to be more intentional with his own health, even if that means just going for walks.

People and Policy

Beyond the emotional strain, caregiving comes with substantial costs. On average, caregivers spend more than $7,000 a year on medical and other expenses to support a loved one, according to in 2021.

Some efforts aim to mitigate the financial burden. In most states, family members can get paid to take care of relatives who qualify for Medicaid. But state Medicaid programs face new pressure from federal cuts, and some states have pulled back funding for home-care programs designed to help residents with disabilities.

Meanwhile, a handful of states for unpaid caregivers. For example, starting in 2027, Connecticut will allow family caregivers who make less than $50,000, or couples who make under $100,000, to apply for a tax credit up to $2,000.

This installment is part of HealthQ’s reporting on caregiving among the sandwich generation. For more, check out the series archive.


Katherine Ruppelt at Nashville Public Radio contributed to this report.


HealthQ is a health series from reporters Cara Anthony and Blake Farmer, approachable guides to an unapproachable healthcare system. It’s a collaboration between Nashville Public Radio and 吃瓜不打烊.

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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Sandwiched Between Caring for Kids and Aging Parents? Reach Out for Resources /mental-health/sandwich-generation-caring-for-children-aging-parents-resources/ Thu, 18 Jun 2026 09:00:00 +0000 /?p=2249675 Your browser does not support the audio element.

Can’t see the audio player? Visit kffhealthnews.org to listen.

Being a family caregiver is hard work. On June 17, 吃瓜不打烊 Midwest correspondent Cara Anthony joined WAMU’s Health Hub to discuss her experience with parenting while also caring for aging parents. Listen in as she shares tips for other members of the “sandwich generation.”

A close up shot of a woman sorting daily medication for a senior woman seated beside her.
(DigitalVision/Getty Images)

Are you juggling the responsibilities of raising children and having aging parents?

Navigating that role can come with new responsibilities, stressors, and unexpected expenses, but claiming the caregiver identity can help. Researchers have found that people who identify as caregivers are more likely to use support services and feel a sense of community with others.

吃瓜不打烊 correspondent Cara Anthony joined WAMU’s Health Hub on June 17 to share her experiences as a parent with aging parents.

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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Kids Keep Getting Stuck in Hospitals, Even After Being Cleared for Discharge /health-industry/hospital-boarding-social-stays-children-kids-missouri-illinois/ Mon, 18 May 2026 09:00:00 +0000 /?p=2237614 Overwhelmed by the demands of caregiving, Quette dialed 911 when she found her teenage son downstairs in their kitchen struggling to breathe.

He had rolled his wheelchair to the oven to keep himself warm as he tried to regulate his temperature, she recalled, and was drenched in sweat from an apparent infection.

In that moment, Quette knew that she and her son’s grandmother could no longer meet his medical needs on their own at their Illinois home just outside St. Louis. He had become paralyzed when he was shot in 2023, and, despite their efforts, they struggled to take care of him. But she never imagined that her quick call for help that day would turn into a months-long hospital stay for her son 鈥� even after he was well enough to be discharged.

She said their family had been begging hospitals for a home health aide to help care for his wounds, only to be accused of neglect. “They were like, 鈥榃ell, y’all almost killed him,’” she recalled officials telling her. 吃瓜不打烊 agreed to use only her nickname to protect the safety of her son.

“I had to give up. I just couldn’t take care of him anymore,” Quette said. “It was just a lot on me. It was something that I was not ready for.”

Once his immediate medical needs were addressed, her son didn’t leave the hospital. His grandmother, who was his legal guardian, had died and the teen ultimately became a ward of the state. He continued living inside a St. Louis children’s hospital for what’s commonly called a “social stay.” Also referred to as hospital boarding or delayed discharge, the practice of keeping children in hospitals “beyond medical necessity” has become a persistent problem 鈥� flummoxing officials in Missouri, Illinois, Minnesota, Georgia, and beyond 鈥� when there’s no safe place to care for the child.

Finding homes for foster kids is difficult across the country. They have spent nights in casino hotels in Nevada and offices in Georgia . This problem even has a name: “hoteling.” But add medical needs to the mix, and hospitals become the holding station for some kids.

Many children stuck in this limbo have mental health or behavioral issues, while some have chronic physical conditions or disabilities for which they need technology, equipment, or other assistance.

“It’s definitely a national problem,” said , a pediatrician at Boston Children’s Hospital and the chair of the American Academy of Pediatrics’ . “Every state has different options in terms of where kids can go post-acute care. But in general, there’s many of our kids with medical complexity who just don’t have access to the appropriate home nursing to bring them home safely.”

It’s gotten so bad that Missouri lawmakers have repeatedly to try to significantly reduce the number of hospital boarding days each year and eventually end the practice altogether.

A woman, photographed from the shoulders down, holds a piece of medical equipment that was once used by her son.
Quette with the brace that her teenage son needed after he was paralyzed in a shooting. She cared for him in her Illinois home, she says, until it became too difficult to keep him healthy there. 吃瓜不打烊 agreed to use only her nickname to protect the safety of her son. (Cara Anthony/吃瓜不打烊)
A close up shot of someone's hands holding a box of medical items.
Quette shows some of the medical supplies she needed to care for her teenage son after he was paralyzed in a shooting. It ultimately became too difficult, she says, for her to keep him healthy at home. (Cara Anthony/吃瓜不打烊)

Quette said her son was housed in a private hospital room while he waited for the state to find a place for him elsewhere. Other children spend weeks, months, and, in extreme cases, years in acute care hospitals while grown-ups scramble to find them safe places to go, according to Lynn Rasnick, a nurse and vice president at the Missouri Hospital Association. She said some children sleep on emergency room stretchers. They sit in windowless rooms. They miss school. And they’re exposed to all the trauma that comes through the hospital on any given day.

To keep young boarders safe, some hospitals hire “sitters” for kids with no place to go, while other institutions have passed along chaperoning duties to hospital workers.

But all that comes at a cost beyond the toll it takes on kids and families. When a child no longer needs hospital-level care, insurers don’t have to pay for their stay. Some hospitals eat the cost. Others ask the state for reimbursement if the child who is waiting for placement is in state custody.

According to the Missouri Hospital Association, the state’s Department of Social Services reimbursed $16.3 million to 19 hospitals for 9,943 boarding days last year 鈥� more than $1,600 a night. But association spokesperson Dave Dillon said that’s a substantial undercount of the problem and that hospitals often aren’t reimbursed for housing children.

One study found that boarding a child with a complex medical condition in Minnesota a day in 2017. And a 2023 Minnesota Hospital Association survey of about 100 hospitals of “unnecessary” patient stays for adults and kids at $487 million for 195,000 days of care.

Lin, the Boston-based pediatrician, said a shortage of home healthcare workers forces some families to keep their children in the hospital, even though they’re well enough to go home.

State Medicaid programs face new pressure from federal cuts in congressional Republicans’ One Big Beautiful Bill Act. Medicaid, which provides healthcare coverage for those with low incomes or disabilities, is expected to lose nearly $1 trillion in federal funding by 2034, so some states are already threatening to scale back optional home-care programs.

Quette, a single mom who once worked as a paid caregiver and now works as a custodian, said her family repeatedly asked hospitals for a home health aide but was told her son’s insurance wouldn’t cover it. Her son’s paternal grandmother, who had helped raise him, was in a wheelchair herself at that point. Quette’s son needed his bandages changed regularly, and she had to turn him around in his bed every four hours.

“I had to wake up out of my sleep to rotate him,” Quette said. “And I couldn’t do it. I was oversleeping.”

Parents across the country face similar challenges. Last year, Georgia officials said 500 children had been and turned over to the state’s Division of Family & Children Services due to complex behavioral or psychiatric needs.

In Colorado, a hospital worker emailed a state representative for help after an autistic 13-year-old boy at UCHealth Longs Peak Hospital in Longmont. After his father left him there, officials told hospital workers that it would take months to find a safe place for the boy to go.

Last fiscal year, the Illinois Department of Children and Family Services logged 304 cases of youth in psychiatric hospitals beyond medical necessity, according to an released by the state. About 43% of those cases were among patients ages 13 to 16.

This year, Missouri state Sen. , a Republican, introduced a bill that would require his state to move faster and pay for care when a child is stuck in a hospital. Similar bills died in committee and . This year, Burger’s bill remained stuck in committee when the legislative session ended May 15.

According to a attached to the bill, paying for hospital boarding could cost more than $148 million a year in a state that already to fund its upcoming $50.7 billion budget.

Over 18 months, the Mercy hospital system, one of the largest in Missouri, logged 2,687 boarding days, testified Patty Morrow, a Mercy vice president, in a March hearing on the bill. That included adults who also were stuck without a safe place to go.

“That was never really ever the intended purpose of a hospital,” Morrow told 吃瓜不打烊. “The current state cannot be the ongoing solution.”

The bill requires the juvenile court system to ensure that children are placed in “an appropriate setting,” which would entail involvement of social workers and other public servants.

Rasnick, with the Missouri Hospital Association, also spelled out the issue during the hearing. “You can’t just discharge a 9-year-old into the street,” she told lawmakers.

Quette’s son is still in state custody but no longer hospitalized. Illinois officials declined to let the teen share his story with 吃瓜不打烊.

His mother said she is still holding on to his brace, bandages, ointment, and other medical supplies in her home. “That’s all I have,” Quette said. “That’s the stuff I will never give away.”

This piece was supported by a grant from the Association of Health Care Journalists, with funding from The Joyce Foundation.

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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Can I Opt Out of Having My Doctor Take Notes With AI? /health-industry/healthq-ai-scribes-notetaker-doctor-visit-data-privacy/ Tue, 07 Apr 2026 09:00:00 +0000 /?post_type=article&p=2173301

LISTEN: AI scribes are changing medical care. Here’s what to know if the technology shows up at your next doctor’s appointment.

Family physician Eric Boose has been using an artificial intelligence tool to get back to what he calls “old-fashioned medicine” 鈥� talking with patients face-to-face, without having to type into a computer at the same time. 

“I can really just sit there and engage and just focus on them and listen,” said Boose, who . 

Roughly two years ago, he started using an AI notetaker app during patient visits. The tool listens while he talks with patients and then automatically generates a visit summary based on the conversation. The summary is usually ready within seconds after the appointment ends. 

“It’s taking care of all that tedious work of charting and taking notes during the visit,” he said. “It’s just freeing up a lot more time to get that done, and I can get home to my family earlier.” 

Nearly a third of physician practices are using AI scribes and others are working to add the tool, in an effort to cut down on administrative work. 

If your practitioner suggests using an AI scribe at your next appointment, here are three things to keep in mind:

1. Clinicians should ask for your permission. 

At the start of an appointment, your doctor might ask something like, “Are you OK if I use an AI scribe to help me take notes during this appointment?” A common practice is to accept verbal, not written, consent from patients before turning the tool on. However, the legal requirements for getting permission to record a patient conversation vary by state. 

Boose said you can ask to pause the AI scribe at any point, especially to discuss something sensitive. And if you decline altogether, your practitioner will likely return to taking manual notes on a computer. 

2. AI scribes make mistakes too, so check their work. 

Like other AI tools, medical scribes can “hallucinate,” or spontaneously add errors into a record. AI scribes can also omit important information or miss context clues within a conversation. 

Clinicians are supposed to review and edit the AI-generated visit summaries before adding them to a patient’s record. As a patient, it’s a good practice to carefully review your visit summary and contact your health provider if you notice errors. 

3. Yes, the AI company could use your data, with limitations. 

Companies and health systems that offer AI scribe tools have access to medical data and are subject to federal standards about how they use and store patient data, under the Health Insurance Portability and Accountability Act, more commonly known as HIPAA. 

They may use data from your appointment to help improve their software without informing you, said Darius Tahir, who reports on health technology for 吃瓜不打烊. “鈥奍f information is 鈥榙e-identified,’ which can mean stripping it of identifiers [and] making sure it’s not personally traceable back to people, then it is more free to be used in more ways,” he said. “There are way fewer regulatory requirements.” 

If you want to know how your data is being used, ask either your practitioner or medical system for more information. But you might not get a clear answer, Tahir said. 

People and Policy 

The U.S. health care system will likely continue to integrate AI technology into patient care. The Trump administration strongly supports the development and use of AI, especially in health care. In early 2025, President Donald Trump issued  reducing existing regulations on AI to help the U.S. “retain global leadership of artificial intelligence.” In December, the U.S. Department of Health and Human Services released an  stating that the department supports “integrating AI to modernize care and public health infrastructure to improve health at the individual and population levels.” 

Emily Siner at Nashville Public Radio contributed to this report. 

HealthQ is a health series from reporters Cara Anthony and Blake Farmer, approachable guides to an unapproachable health care system. It’s a collaboration between Nashville Public Radio and 吃瓜不打烊.

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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Taking a GLP-1? Doctors Say Not To Forget About Movement and Mental Health /mental-health/healthq-glp1-weight-loss-drugs-mental-health-dosage-exercise/ Thu, 26 Mar 2026 09:00:00 +0000 /?post_type=article&p=2171523

LISTEN: Taking a GLP-1? Doctors say don’t forget to move your body and tend to your mental health, too.

Severe ankle pain drove Jelon Smart to start taking a weight loss injection a year and a half ago.

Smart was 285 pounds and worked as a caterer in Savannah, Georgia. After she’d been standing on her feet for long hours, her ankles would be “as swollen as a football,” she said. She was walking with a limp. An orthopedic doctor diagnosed her with Achilles tendinitis and recommended losing weight to mitigate the symptoms. Smart began taking the brand-name GLP-1 Ozempic.

The appetite suppression resulted in her shedding pounds quickly, at first.

“I lost 30 pounds initially without changing anything,” said Smart, 48. But then she found herself unable to shed additional pounds.

GLP-1s have quickly become one of the most popular types of weight loss drug in America. Nearly 1 in 5 people have taken them at some point, , a health information nonprofit that includes 吃瓜不打烊. But doctors say it takes more than a regular shot for patients to achieve their weight goals in the long run.

Here’s what to know.

The Old-School Rules of Weight Loss and Health Still Apply

Regular exercise, smart food choices, plenty of sleep 鈥� those basic, healthy lifestyle choices are not only going to help you lose weight on a weight loss drug but also help you keep it off, said Dafina Allen, an 鈥妎besity medicine physician who runs a clinic in Saginaw, Michigan. For example, some people find that they eat less on a GLP-1, “but they’re not improving their health because they’re not exercising. They’re not improving the quality of the food they’re eating,” Allen said. The path to weight loss is also guided by hormones, metabolism, and genetics.

After her weight loss on Ozempic plateaued, Smart realized she needed to start moving her body, too. 鈥�“I’m in the gym now six days a week,” she said. “I went from 285 to 175” pounds. The swelling and pain in her ankle went away as well.

A before and after photo of Jelon Smart.
Jelon Smart, from Savannah, Georgia, lost 110 pounds after starting on Ozempic 鈥� but only after starting an intensive workout regimen, too. (Christopher Smart, Jennifer Davis)

Mental Health Matters, Too

The mind and body are deeply connected. Food and body image can be especially emotional, Allen said. “I can tell you about the patients that I helped lose 50 pounds, that I helped lose 100 pounds, and they still look in the mirror and are not happy.”

The key is seeking help for mental health along the way, said Gerald Onuoha, who practices internal medicine in Nashville, Tennessee. “Making sure that you’re talking to people about your problems, whether it’s a family member or a licensed professional, I think goes a long way,” he said.

Work With a Doctor To Closely Monitor Your Dosage

Onuoha said people can run into serious problems if they increase their GLP-1 dosage too quickly or don’t follow the recommended schedule. He’s seen patients come to the hospital with pancreatitis, gallstones, or acute kidney injury. 鈥�“I always ask patients that are on GLP-1s: How long have they been on them?” he said. “Are they adhering to the directions? Because those things determine whether or not you’re going to have those complications.”

Part of the issue, Allen said, is that GLP-1s are relatively easy to access 鈥� and often much cheaper 鈥� through online pharmacies or websites, but those providers may not educate patients about their dosage or side effects. “So they might just go online, find a random company that will ship it to their house, where they don’t even know what dose of the medication they’re taking, or even if the medicine is safe for them as the patient with the medical conditions they have,” she said.

People and Policy

GLP-1 drugs can be costly, and most insurance programs 鈥� public or private 鈥� don’t cover the medications for weight loss. Medicaid, the government program that covers 69 million Americans, covers GLP-1s for medically accepted conditions like diabetes, but only about a dozen state Medicaid programs cover GLP-1s for obesity treatment, . For older Americans with Medicare, the federal government is planning to allow temporary coverage of GLP-1s for weight loss starting in July.

Katherine Ruppelt at Nashville Public Radio contributed to this report.

HealthQ is a health series from reporters Cara Anthony and Blake Farmer, approachable guides to an unapproachable health care system. It’s a collaboration between Nashville Public Radio and 吃瓜不打烊.

吃瓜不打烊 is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF鈥攁n independent source of health policy research, polling, and journalism. Learn more about .

This article first appeared on 吃瓜不打烊 and is republished here under a .

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